Att drabbas av cancersjukdom under barndomen. Om existentiell sårbarhet och kraft i ett långtidsperspektiv

Margaretha Stenmarker; Maria Olsson; Marianne Jarfelt

Vol. 100 No. 1 (2023), Tema: Existentiell hälsa - En bortglömd determinant?

Vol. 100 No. 1 (2023)

Att drabbas av cancersjukdom under barndomen. Om existentiell sårbarhet och kraft i ett långtidsperspektiv

Tema: Existentiell hälsa - En bortglömd determinant?

Published 2023-03-27

Margaretha Stenmarker⁺⁻
Maria Olsson⁺⁻
Marianne Jarfelt⁺⁻

Margaretha Stenmarker

Institutionen för kliniska vetenskaper, Avdelningen för pediatrik, Sahlgrenska akademin, Göteborgs universitet

Maria Olsson

Institute of Clinical Sciences, Department of Oncology, the Sahlgrenska Academy, University of Gothenburg

Marianne Jarfelt

Institute of Clinical Sciences, Department of Oncology, the Sahlgrenska Academy, University of Gothenburg

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Keywords

existential health; childhood cancer survivors; long-term follow-up; follow-up clinic

Abstract

The aim of this study was to describe existential issues in adult childhood cancer survivors (n=322) who visited the long-term follow-up clinic in Gothenburg, Sweden, from November 2012 to December 2019. A questionnaire was used, including 13 items reflecting existential aspects of survivorship. The most common concern was related to feeling responsible for living a meaningful life. The results showed an increased existential vulnerability among women in comparison with men, those who received diagnose in their teens compared to those who fell ill at younger ages, those treated with radiation in comparison with those who did not receive radiation, and those who had been treated for a brain tumour compared to other cancers. In conclusion, existential issues need to be addressed as part of the follow-up visits after childhood cancer.

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